Taking care of patients with psychogenic non-epileptic seizures (NES) can produce a mixture of emotions among health care professionals. The condition is still characterised by many uncertainties and controversies, as well as by many different names – such as non-epileptic attack disorder, pseudo-seizures, psychogenic non-epileptic seizures, non-epileptic seizures and dissociative seizures. While scientific publications offer useful insights, they do not generally focus on the personal experiences – favourable or not – of health care professionals with patients with NES. However, accounts of this range of experiences could provide an extremely useful, additional resource for health care professionals who are keen to improve their own understanding and management of patients with NES.
We are approaching you in the hope that you will be willing to spend a few minutes to contribute to a new book in the Brainstorms series. This book will be entitled “Non-Epileptic Seizures in Our Experience: Accounts of Health Care Professionals” and published by Oxford University Press. The book is intended as a forum in which health care professionals can share their own experiences and feelings about their patients with NES. We aim to be inclusive and collect writings from around the world, and from individuals working in a range of different specialities and levels of seniority. Your writing will be used for educational purposes, for instance helping other professionals to improve their understanding of the condition. Your writing may also provide insights for patients with NES and help them to realise how professionals feel and understand the problems that they face when treating their disorder.
More information about the book and instructions on how to send us your account can be found at: https://sites.google.com/site/brainstormshcp/
In addition to contributing a story, you could also support this project by passing along this letter to any colleagues who you think may be interested in submitting their own writing.
If you have any questions please contact Gregg Rawlings at Gregg.Rawlings@bthft.nhs.uk or at Academic Unit of Elderly Care and Rehabilitation, Bradford Teaching Hospitals NHS Foundation Trust, BD9 6RJ.
Thank you very much.
Professor Markus Reuber,
Honorary Consultant Neurologist
Dr Gregg Rawlings,
Senior Research Fellow
Professor Steven Schachter,
Professor of Neurology